jenmarya ([info]jenmarya) wrote,
@ 2008-02-18 21:09:00
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The Belgian School That Mistook a Boy for An Autist

 Fascinating article on whether  "neurodiverse" kids need curing--or a culture of their own? Juliette Guilbert explores new developments in living with autism, ADHD, Asperger's and other conditions.

I have a friend whose son has been labeled as autistic by the Belgian school system on the testimony of a single teacher although he was tested in her home country by a group of experts and found to have several conditions, foremost delayed speech, but not autism.  I can only imagine her outrage. Her boy started school three months ago and had never been in a creche and hates/d school just like Kaia still does. Kaia's teacher, on the other hand, understands that non-creched children take longer to come out of their shell.  She said the one other child she has beside Kaia who'd never been to a creche took three months to relax. She wouldn't write up Kaia's antisocial behavior as autism. Wish my friend had gotten her guy into St. Lambertus with Juf Bea. The twit of a teacher her son has now has prematurely given up on him.

There's no question he has a speech delay--just a few words at 3 is a delay--but this little guy is in no way autistic. His parents speak different languages, one Serbian, one Croatian, and they converse in English, and the rest of his world speaks Dutch. When I first met him, in a park, he began talking animatedly, with broad gestures. I assumed it was a language I didn't know. His mother told me it was nonsense. I had no idea because what came across was his desire to communicate, not an autistic trait. The last time I saw him, he was having a fine time at his birthday party, listening to people to talk and sing to him, waiting for the appropriate times to blow out the candles. What struck me about him most was how he seemed to mingle with everyone at the party, coming by and interacting nonverbally. I really enjoyed how he and another boy slung their arms across each other's shoulders and then fell backwards onto a chair and watched tv. Silent, sure, but interacting.  If only that idiot teacher he has could have seen him then.

I hope someone competent revisits his official diagnosis. Non-verbal doesn't mean autistic. My friend's experts had a variety of exercises and suggestions and without the school's corroboration, few, if any, will be supported. She'll have to do it all herself.
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From the above article, this was a striking factoid : 
     In 2007, Laurent Mottron, a professor of psychiatry at the University of Montreal, led a group of American and Canadian researchers who gave autistic and normal children two of the most common IQ tests: the Wechsler scales, which is heavily language-based, and Raven’s Progressive Matrices, which asks subjects to complete complex visual patterns in a wholly nonverbal format. The non-autistic kids had similar scores on both tests. But while no autistic child scored in the “high intelligence” range of Wechsler, one-third did on Raven’s. Similarly, one-third of autistics scored in the mentally retarded range on Wechsler, but only one in twenty did on Raven’s. The researchers were able to reproduce the results with a group of autistic and normal adults. The implications are startling: At least some autistic people previously considered intellectually deficient may, in fact, be in the normal or even gifted range when it comes to abilities such as memory and abstract reasoning. One autistic subject who was deemed mentally retarded by the Wechsler scored in the 94 th percentile on Raven’s.  




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[info]traballenguas
2008-02-19 07:45 am UTC (link)
Grr. Delayed speech seems normal for that situation. You would think a small country where people speak different languages would be up on that.

I have a friend who dated a borderline autistic guy who worked at Google. She says that she thinks that a lot of them are slightly autistic. It may be much more common among computer nerds than people think. Severe autism is, of course, debilitating.

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[info]jenmarya
2008-02-19 10:34 am UTC (link)
Seems asperger's and autism and ADHD are over-over-over-diagnosed, as anything that is defined with a constellation of behaviors can be. IMHO would be more effective to stick with the specific behavior without the whole label unless it is an extreme. I think there are armies of kids on ADHD medication that shouldn't be...and now one more unhappy little guy with a lazy teacher. Grrrr indeed!

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[info]traballenguas
2008-02-19 10:48 am UTC (link)
Yes, especially with children. However, I think a diagnosis of "borderline" cases can be useful in a clinical setting, because the treatments may be different (say, for migrane, it isn't a "normal" headache).

That said, we have a different problem here, in that the school we were at had some very clear cases of behavioral disorders and there was not a single case diagnosed.

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[info]jenmarya
2008-02-19 06:23 pm UTC (link)
"Borderline in a clinical setting"--Hmmm, kind of begs the question as to how they got in a clnical setting with merely borderline symptoms. :D Wait a minute... I recognize this approach! It's from House, MD! Treat someone for bits and pieces of something until you are sure it fits the whole! Yeah! :p

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[info]traballenguas
2008-02-19 06:30 pm UTC (link)
Huh? There are tons of things that cause problems, but aren't "full blown". Like, say, elbow pain! ;-)

Sorry, I think you made a TV reference there, but we haven't had one for 1o years, so I missed it :-(

Seriously, though, if you know what you are dealing with, you can anticipate problems, and sometimes prevent them. Of course, teachers shouldn't be diagnosing kids. Even doctors need a second opinion more often than not.

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[info]jenmarya
2008-02-19 06:54 pm UTC (link)
Maybe we're talking apples and oranges? True, physical symptoms where things are causing problems but aren't full blown can be attended to in a clinical setting, like a routine visit to the doc. Mental symptoms where things aren't full-blown 1) rarely get attended to in a clinical setting, and 2) are likely to be mislabeled since the mind is so much more complex and harder to test than the body. For every time my brother has seen a mental health professional, he's had a different diagnosis, and each was in a clinical setting with extreme symptoms, so it's hard for me to imagine someone with minor issues getting more precise labeling leading to better help.

You are so lucky not to have a tv. The sheer amount of time you must save. No wonder you have time to write wonderful stories...

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[info]traballenguas
2008-02-19 07:27 pm UTC (link)
I spend all my saved time on the IyntarWaeb! So, I waste it anyway :-P

Yes, mental health issues are a whole different stories. I was under the impression that autism was a more clear thing than, say, a personality disorder, but I don't really know that much about it. I have a friend whose son is autistic, and based on that it seems they suspect that his other son is slightly autistic, because of a lot of issues he was having - paying attention, etc., suddenly seemed to make more sense. But the older boy is not autistic.

However, it has been a good thing, because now his parents are much more patient with him and less likely to scold him for not listening, etc. I had a chat with my friend about it, and he told me he felt bad about having been kind of a hard-ass with his older son. So, sometimes it helps :-).

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[info]jenmarya
2008-02-19 07:33 pm UTC (link)
patience is a good thing, no matter how someone comes by it.

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[info]traballenguas
2008-02-19 07:37 pm UTC (link)
Indeed. Got any you don't need?

:-D

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[info]peterke
2008-02-19 05:04 pm UTC (link)
To be fair, serbian and croatian are exactly the same; they just use different alphabets to write it down (latin & cyrillic). They also don't converse in English, but in serbo-croatian. So the boy was never exposed to another language than serbo-croatian till he went to school (and the random dutch he hears on the street of course). His speech delay is quite severe in that context I think.

The problem is of course that the kid doesn't understand dutch at all and can't express himself verbally, so it must be extremely hard to pick up the kindergarten-language (dutch).

Personally I think it would be best for him to go to a serbo-croatian kindergarten, but for that they'd have to move back...

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[info]jenmarya
2008-02-19 06:18 pm UTC (link)
And no, the languages are emphatically not the same. There is a huge difference in vowel pronunciation, inflection, and syntax. If I were in the middle of learning one and then was told that the other was the same, I'd start babbling nonsense, too--it's that different. I have no argument that he has a severe speech delay, but it is not autism.

BTW, you are thinking just what the experts told her in Belgrade--put him in school there.

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[info]eileen2112
2008-02-19 10:30 pm UTC (link)
I've known loads of kids in bilingual households who had exactly the same problem, and in the long-run it's SO much better for them. I'm sure he'll come around. That teacher's retarded if she's confusing delayed speech with autism, they're completely different.
On a side not...whoa, a serb and a croat married? My grandmother (croatian) always taught me that serbs carried knives....enlightened, hmmm?

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[info]jenmarya
2008-02-20 08:38 am UTC (link)
Yeah, teacher's an idiot, and so is the school official who decided to ink "autistic" on the boy's permanent record based on the idiot teacher's assessment. My friend begged the retarded official to observe her son to no avail.

Carried knives? :) Not that I've noticed. I know a Belgian who likes to carry his swiss army knife (with the teeny screwdrivers in it) around... Does that count?

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